Electronic patient records and databases in research

This scheme - in partnership with the Economic and Social Research Council (ESRC), the Engineering and Physical Sciences Research Council (EPSRC) and the Medical Research Council (MRC) - aims to stimulate and support the use of electronic databases for health research, taking advantage of the new electronic technologies that are under development. Awards were announced in July 2008 and the research projects are still in progress.

Background

Electronic patient records and longitudinal cohort databases provide a rich data source with the potential to answer key questions in biomedical, clinical and public health research across the full range of infectious and non-communicable diseases and other medical conditions. They can also be used to investigate the effectiveness of both drug-based and non-drug-based treatments and interventions.

The grantholders' names are grouped alphabetically by surname.

| B | C | D | G | H | J | M | P | S | T | V | W |

B

Professor Derek Bell
Imperial College London
To evaluate the patient and public understanding of the role of electronic databases and patient records in healthcare research and increase awareness through active engagement and production of lay orientated information material.

C

Dr Jacqueline A Cassell
Brighton and Sussex Medical School
Free text methodologies.

Professor Sarah Cunningham Burley
University of Edinburgh
Scottish Health Informatics Programme (SHIP) Public Engagement.

D

Professor John Danesh
University of Cambridge
A pilot study for the establishment of large-scale bioresources by linking blood donor samples with electronic health records.

Professor Carol Dezateux
Institute of Child Health, University College London
Using health record linkage in the UK Millennium Cohort Study to investigate childhood obesity, asthma, infections and immunisations in early life.

G

Professor Martin C Gulliford
Kings College London
Cluster randomised trials in a primary care database: utilising electronic patient records for intervention research.

H

Professor Harry Hemingway
University College London
Cardiovascular databases / cohorts.

Professor Richard B Hubbard
University of Nottingham
Enhancing the research potential of primary care databases.

J

Dr Richard P O Jones
University of Leeds
Training and education for the developers of databases in research and clinical practice.

M

Professor Alison Macfarlane
City University London
Linkage of birth and maternity data in England and Wales.

Professor John Macleod
University of Bristol
ALSPAC linkage data.

Professor Andrew D Morris
University of Dundee
The Scottish Health Informatics Programme (SHIP).

P

Professor Munir Pirmohamed
University of Liverpool
Pharmacogenetics of statin-induced muscle toxicity: exploration using the UK General Practice Database (GPRD).

S

Professor Caroline A Sabin
Royal Free Hospital School of Medicine, UCL
Enhanced information technology framework and public patient involvement in UK national HIV databases.

T

Dr Laila J Tata
Nottingham City Hospital
Drug safety in pregnancy.

Mr Nigel Townsend
Y Touring Theatre Company, The Tonbridge Club
Theatre of debate: electronic patient records and databases.

V

Dr Tjeerd van Staa
General Practice Research Database
Statins trials.

W

Mr Perry M Walker / Mr Stephen Whitehead
New Economics Foundation
Who sees what?Using electronic patient records for healthcare and research.