We use cookies on this website. By continuing to use this site without changing your cookie settings, you agree that you are happy to accept our cookies and for us to access these on your device. Find out more about how we use cookies and how to change your cookie settings.

Sharing your patient record can help researchers save and improve lives

Translation Fund

The NHS is creating a new system to share information from patient records to improve care and research, while protecting each person's confidentiality. Everybody in England can choose how information from their patient record is shared in this new system.

As you make up your mind about sharing your records, more than 40 medical research charities and organisations have joined together to tell you more about how your information can be used for medical research and help you find out more about how your information will be kept safe.

Every time you visit an NHS hospital or your GP, information about your health is recorded and stored in your patient record. The NHS uses this information to help provide the best clinical care for you.

Because your patient record contains personal information about your health, it must be handled very carefully and accessed safely and securely, protecting your confidentiality.

Information from your record can also be used to improve healthcare delivery for all patients, and by health researchers who use it to help them understand the causes of disease and to find better treatments.

NHS England has announced that it plans to delay the collection of data from GP surgeries until the autumn and that it will work with patients and professional groups to ensure information is accessible and reaches all sections of the community in order to build confidence in the initiative.

We understand this decision as we believe that, whilst sharing information from medical records is important for medical research and healthcare delivery, the systems for achieving this need to be trusted and understood by everyone. This delay should allow for fuller communications that ensure people are aware of how their data will be collected and used, the safeguards that are in place, and how to exercise their right to object.

Your choices The NHS is contacting you now with information about the changes and your options
FAQs How researchers may access your information
Why do researchers need your information? Read examples of how researchers have used patient information to save and improve lives
Find out more Links to useful websites

Supporting organisations

Patient records: your choices Download PDFDownload PDF
Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE, UK T:+44 (0)20 7611 8888