Public Health Research Data Forum
The Public Health Research Data Forum brings together more than 20 funders of global health research from around the world who are working in partnership to increase the availability and use of health research data in ways that are equitable, ethical and efficient, and will accelerate improvements in public health.
The following case studies illustrate how enabling timely and appropriate access to the datasets generated by public health and epidemiology research can advance research and its application for health and societal benefit.
- COHORTS - sharing data to improve knowledge of the origins of chronic disease in pregnancy and early childhood [PDF 163KB]
- IHOPE - Using large-scale linked data to target service improvements for Australian Aboriginal people [PDF 142KB]
Latest Forum activities
- New report identifies relevant models which could be used to enhance data discoverability and re-use, and explores the feasibility of these models.
- Forum commissions major research project on data linkage.
- New research report explores capacity and skills for data management.
- Summary of Funders Data Sharing Policies.
- Research explores the opportunities and challenges for the use of data citation tools in public health research.
The Forum has its basis in a joint statement launched on 10 January 2011, which was published in the 'Lancet'.
- Read the statement in full
- Find out more about the background to the statement
- Read the ‘Lancet’ commentary article [PDF 48KB]
We are committed to engaging as broad a base of funders in these discussions as possible, and the statement will remain open for other funding organisations to join as signatories and partners over time.
We would welcome feedback at any time from the community with respect to priorities for this work. If you would like to share your views or are considering becoming a partner, please contact David Carr at the Wellcome Trust.